In the U.S. alone, over 500 new cases of Epilepsy are diagnosed every day.
This statistic is personal to our family. On August 29, 2006, our daughter, Sarah Morgan Fradkin, was diagnosed with Epilepsy at the age of 6. After months of tests and trying different seizure medications, Sarah’s seizures decreased from hundreds each day to zero. Sarah was seizure-free for 3 years before the seizures started again on February 4, 2010. Since diagnosis, 18 different anti-convulsant medications and the modified ketogenic diet have failed. Nothing has been successful in controlling her seizures.
In April 2011, Sarah had multiple brain surgeries trying to identify where the seizures start. Unfortunately, the team of doctors were not able to locate the area of the brain where the seizures originate, so a resection of the area was not possible and Sarah continues to seize.
Sarah is in 8th grade this year and continues to have seizures. Sometimes these seizures can last up to 3 hours.
For those of you learning about Sarah for the first time, please understand that Sarah is doing great when she is not seizing. She swims, plays soccer, and participates in girl scouts. The problem is that when Sarah seizes, she misses hours of her life and this is not acceptable.
Sarah’s quest to lead a seizure-free life is our mission.
When Sarah was 6 she did not ask questions but now at age 13 she wants answers.
What are seizures? Where do they come from? How do we stop them?
Unfortunately we do not have answers to these questions.When we asked what our family could do to help, we were told, “create awareness and raise funds for research.”
Funding for Epilepsy research is only a fraction of that given to Alzheimer’s, Parkinson’s and other well known diseases, yet more people suffer from Epilepsy than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy and Parkinson’s combined.